On Monday, April 23, 2012 we took Sophia to our doctor because she looked very pale and had been feeling tired. Her doctor did a urine test and suggested we go for blood work that afternoon. The next day, Sophia stayed home from school again and we had just finished planting flowers in our garden when our doctor called with the results of the lab work. She said it did not look good, that Sophia was severly anemic and we needed to discover why. Our doctor told us she had called Johns Hopkins and they were waiting for us in the ER. Sophia was given a blood transfusion and more blood was taken. On Wednesday morning, April 25, we were told that Sophia had acute lymphoblastic leukemia (ALL). She endured another day of agonizing blood draws and more testing. The following morning Sophia received a bone marrow biopsy, lumbar puncture and began her chemotherapy treatment. We spent 11 days in the hospital before Sophia was allowed to continue her treatment at home.Her treatment was moving along fine until September 14 when Sophia spiked a fever. We went to the ER and discovered that she was severely neutropenic. She ended up back in the hospital for another 11 days.
Throughout this journey, Sophia has amazed everyone with her strength and positive attitude. She has become a role model to countless people. Sophia began maintenance on January 2, 2013. We expect there will be bumps along this journey, but we are certain that it will be Sophia's spirit that helps us all persevere.
-John & Jane McCaul, Sophia's parents
As an Honored Hero, Sophia is an inspiration to all Light The Night walkers, and reminds us why participating is so very important to children like her.